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07 February 2017

Personalised information packs for patients with haematological cancers have been launched to help them as they go through treatment.

The free packs, which were unveiled by blood cancer charity Bloodwise on World Cancer Day (4 February, 2017), will enable patients to collate and store information on their specific illness and record their thoughts and feelings in a diary. It will also contain the contact details of their dedicated clinical nurse specialist.

The charity created the patient folders in response to research, which found that almost all blood cancer patients want information at diagnosis about their specific condition and potential treatment procedures.

Acute leukaemia nurse Gill Brisley, who works at the Catherine Lewis Centre in Hammersmith Hospital, said: 'There is a lot of information to take in, particularly at diagnosis. This can often be overwhelming for patients and relatives.

'As a clinical nurse specialist, it has been really helpful to give my patients a comprehensive, individualised information pack that they can read in their own time. The folder allows all the information to be kept in one place and looks far more professional, and there is a purpose made slot for a CNS contact card, too, which has proved really useful.'

Reta Brownlow, head of patient services at Bloodwise, said: 'Lots of patients tell us that they’ve never heard of their blood cancer before they’re diagnosed, and they struggle to fully understand their condition or treatment. We hope these folders, combined with our wide range of blood cancer information, will help ensure that everyone affected by blood cancer gets the personalised information and support they need to help them through treatment and beyond.'

Oncology nurses and blood cancer patients can order the free packs online at bloodwise.org.uk/folders. Alternatively, email information@bloodwise.org.uk or telephone 0808 2080 888.


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