Useful links to other organisations who support medical professionals working in haematology or who provide patient support.
Please note that the British Society for Haematology is not a patient body but a professional membership society staffed by administrators not doctors. Therefore we are unable to assist with individual patient queries.
The British Blood Tranfusion Society (BBTS) offers training and education programmes including Specialist Certificate qualifications as well as a Post-Grad Cert/Dipl/MSc in Advanced Specialist Blood Transfusion Practice. It also holds the UK's leading transfusion conference.
The British Society of Blood and Marrow Transplantation is an organisation for those with a professional interest in haematopoietic cell transplantation. For public interest, their site also contains a list of UK transplant centres and doctors available.
The International Society of Geriatric Oncology, founded in 2000, aims to optimise the treatment of cancer in older adults. It does this through education, research and clinical practice.
The International Society of Blood Transfusion (ISBT) is an international network of medical professionals that is used to share knowledge about the practice of blood transfusion. Their website provides opportunities for members to get involved in e-working groups and provides access to webcasts captured at their Regional and International Congresses. It also features around 300 scientific guideline documents from 25 different countries and organisations.
The Serious Hazards of Transfusion organisation collects and analyses information on adverse events and reactions in blood transfusion in the UK. They hope to improve long-term outcomes in patient care.
The Sickle Cell Information Centre is a US based site offering resources for both medical professionals and patients and their families.
The Thalassaemia International Federation (TIF) Industry Circle, officially launched in 2012, is a network of pharmaceutical industries that share a common interest in haemoglobin disorders (thalassaemia and sickle cell disease) and in the development of technologies relating to their prevention, treatment and monitoring.
The European Society for Blood and Marrow Transplantation (EBMT) is a non-profit organisation, established in 1974, to give scientists and physicians involved in clinical bone marrow transplantation the opportunity to share experiences and develop co-operative studies.
The International Society on Thrombosis and Haemostasis (ISTH) is a global not-for-profit membership organization advancing the understanding, prevention, diagnosis and treatment of thrombotic and bleeding disorders.
This is a collection of professional guidelines aimed predominantly at hospital staff. Useful background information about the history of blood transfusion, the use of blood components and blood-borne diseases may be found on the site. E-learning modules are in development.
The UK Myeloma Forum aims to improve the treatment of patients with myeloma by:
- developing and promoting clinical trials of myeloma treatment and linked scientific studies
- encouraging collaborative research in myeloma
- developing guidelines for the management of patients with myeloma
- promoting the education of healthcare professionals and patients in all aspects of the disease
Developed by UK-based haematologists, this site is a comprehensive guide to laboratory haemostasis with comprehensive explanations, web links and exercises in data assessment. This will be a useful resource for the postgraduate as well as the undergraduate student.
The Centre for Evidence-Based Medicine is based at the University of Oxford. Their website includes a list of educational events that the centre conducts and hosts a blog providing an interesting, and often amusing, take on issues in modern medicine.
The Medical Research Council invests in research on behalf of the UK taxpayer. They will consider projects across all disciplines of medicine, covering mental and physical health.
The National Heart, Lung and Blood Institute (NHLBI) provides global leadership for a research, training, and education programme to promote the prevention and treatment of heart, lung, and blood diseases. They aim to enhance the health of all people to facilitate longer and more fulfilling lives.
The National Institute for Health and Care Excellence (NICE) produces evidence-based guidance used by the British National Health Service, and many other countries worldwide, to determine the best pathway of care for patients.
The National Cancer Research Institute was founded in 2001 to aid the collaboration between cancer research funders and form a UK-wide strategic partnership.
A database of systematic reviews and randomised controlled trials (updated monthly) relevant to transfusion medicine.
Focusing on blood cancer, the Anthony Nolan Trust provides information to patients and families about receiving a transplant and life after transplant. It also works closely with clinicians and transplant units to find and match patients to stem cell donors around the world.
Bloodwise are the UK’s specialist blood cancer charity. Founded in 1960, they have been working for over 50 years to improve patient care and conduct research into blood cancer.
DBA UK is a registered charity that delivers support to and conducts research for those living with Diamond Blackfan Anaemia. The charity has a telephone support line and holds an annual conference for patients, parents and carers.
A website offering patients living with haemophilia advice on treatment and an opportunity to share experiences through forums.
The Immune Thrombocytopenia Support Association is a UK charity promoting the welfare of those living with ITP. They employ in-house medical advisers and offer patient and parental support by providing information, guidance for schools and 'listening ear' contact with volunteers.
The Lymphoma Association, a registered UK charity, provides education and training for healthcare professionals and emotional support for patients and those living with Lymphoma. Their patient support offers a diverse range of options including a buddy scheme, support groups, a freephone helpline and a live chat service.
This organisation helps organise informal local and regional groups to enable patients to meet regularly face to face and support each other.
Myeloma UK are a UK charity focusing on the discovery, development and access to new treatments for the condition. They provide support to patients and families through trained information specialists, support groups and up-to-date information regarding clinical trials.
The National Hemophilia Foundation or NHF has, for nearly 60 years, been conducting research into treatment and cures for genetic blood disorders. Their work through education, advocacy and research is conducted in cooperation with the Centers for Disease Control and Prevention (CDC).
The Thrombotic Thrombocytopenic Purpura (TTP) Network was established in 1998 by a TTP patient after receiving responses to an article she had written and published. It provides information for patients and a place for them to share their experiences.
The only UK-wide charity for everyone affected by a bleeding disorder. A community of members, supporters and healthcare professionals.
Thrombosis UK is a registered UK charity which provides a freely accessible site for those affected by the condition. It contains a wealth of practical information about the risks, prevention and treatment of venous thrombo-embolism. As an organisation, Thrombosis UK also offers Research Grants and Travel Fellowships for healthcare professionals and scientists.
The UK Thalassaemia Society has been in existence for more than 30 years and has amassed a wealth of experience in Thalassaemia not only in the UK, but through its network and associations with other countries.
The National Comprehensive Cancer Network® (NCCN®), a not-for-profit alliance of 27 of the world's leading cancer centers that is devoted to patient care, research, and education, is dedicated to improving the quality, effectiveness, and efficiency of cancer care so that patients can live better lives.
For over 50 years, the World Federation of Hemophilia (WFH) has provided global leadership to improve and sustain care for people with inherited bleeding disorders, including hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders.